Comments on: Would Early Screening For Celiac Disease And Gluten Intolerance Decrease The High Prevalence Of Food Allergies, Intolerances, Or Sensitivities Evident In Many Countries? http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/ Tips for the Gluten-Free Community Tue, 29 Jun 2010 16:30:49 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Shelly http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/comment-page-1/#comment-1780 Shelly Thu, 08 Apr 2010 21:09:58 +0000 http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/#comment-1780 FibroHubby, I am sorry to hear about your experience. Unfortunately, I hear this type of story frequently. If doctors and nurses are going to effectively practice and give preventative healthcare, then they must be knowledgeable about celiac disease, the full spectrum of gluten intolerance and food sensitivities. Many healthcare dollars and lives could be saved. Others, could benefit by experiencing an increased quality of life. Thank you so much for your comment, Shelly FibroHubby,

I am sorry to hear about your experience. Unfortunately, I hear this type of story frequently. If doctors and nurses are going to effectively practice and give preventative healthcare, then they must be knowledgeable about celiac disease, the full spectrum of gluten intolerance and food sensitivities. Many healthcare dollars and lives could be saved. Others, could benefit by experiencing an increased quality of life.

Thank you so much for your comment,
Shelly

]]> By: FibroHubby http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/comment-page-1/#comment-1753 FibroHubby Fri, 02 Apr 2010 12:40:57 +0000 http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/#comment-1753 I wish they had tested my wife, or at least suggested trying a gluten free diet. It would have saved us three years of "trying" lots of different drugs that didn't work I wish they had tested my wife, or at least suggested trying a gluten free diet. It would have saved us three years of “trying” lots of different drugs that didn’t work

]]> By: Shelly http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/comment-page-1/#comment-1499 Shelly Wed, 20 Jan 2010 18:39:35 +0000 http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/#comment-1499 Hi Vanessa, Thank you so much for your comment. Yes, the celiac home test is a very convenient option. Thank you for mentioning it. With blood tests, it is important to be aware that no blood test is 100% accurate. Therefore, false negatives could occur, not only with gluten sensitive enteropathy (Celiac Disease), but also with other forms of gluten sensitivity, such as gluten ataxia. Even intestinal biopsy results can be interpreted as a false negative. As well, if someone has an IgA deficiency or no bowel involvement (like some dermatitis herpetiformis patients), then a false negative may occur since the result of this test tends to parallel the amount of intestinal damage present. Due to the elusive nature of Celiac Disease and gluten sensitivity, I recommend that individuals visit with their Medical Doctor (hopefully one that is knowledgeable about gluten sensitivity) for an overall assessment and follow-up. The doctor can test for IgA deficiency and do other tests (IgG anti-tissue transglutaminase antibody, endomysial antibody, antibodies against deamidated gluten, IgA and IgG antigliadin antibody and an upper endoscopy test) that will give a good overall picture. As well, all medical issues can be addressed and referrals can be made to other professionals, such as a Registered Dietitian, a Gastroenterologist or a Neurologist (with neurological involvement). I do worry that individuals using the home test option may assume that they don't have a gluten sensitivity (if the test is negative) or may not seek medical advise (if the test is positive) and proceed with putting themselves on a gluten-free diet with no follow-up (or a scope with biopsies). I hope that everyone using the home test does seek medical attention as well. Thank you very much for mentioning the test. It is important for everyone to be aware of their options. I have talked to many who have had difficulty getting tested due their MD's lack of awareness. This can be frustrating and can lead to unnecessary suffering in individuals who remain undiagnosed. The celiac home test provides a nice option. Shelly Note: Review tests mentioned in some of my posts in the 12 part series, such as the neurology post. http://celiacnurse.com/neurological-symptoms-ataxia-neuropathies-seizures-strokes-migraines-myopathies-dementia-associated-with-undiagnosed-celiac-disease-gluten-intolerance-or-sensitivities/ Hi Vanessa,

Thank you so much for your comment. Yes, the celiac home test is a very convenient option. Thank you for mentioning it. With blood tests, it is important to be aware that no blood test is 100% accurate. Therefore, false negatives could occur, not only with gluten sensitive enteropathy (Celiac Disease), but also with other forms of gluten sensitivity, such as gluten ataxia. Even intestinal biopsy results can be interpreted as a false negative. As well, if someone has an IgA deficiency or no bowel involvement (like some dermatitis herpetiformis patients), then a false negative may occur since the result of this test tends to parallel the amount of intestinal damage present. Due to the elusive nature of Celiac Disease and gluten sensitivity, I recommend that individuals visit with their Medical Doctor (hopefully one that is knowledgeable about gluten sensitivity) for an overall assessment and follow-up. The doctor can test for IgA deficiency and do other tests (IgG anti-tissue transglutaminase antibody, endomysial antibody, antibodies against deamidated gluten, IgA and IgG antigliadin antibody and an upper endoscopy test) that will give a good overall picture. As well, all medical issues can be addressed and referrals can be made to other professionals, such as a Registered Dietitian, a Gastroenterologist or a Neurologist (with neurological involvement).

I do worry that individuals using the home test option may assume that they don’t have a gluten sensitivity (if the test is negative) or may not seek medical advise (if the test is positive) and proceed with putting themselves on a gluten-free diet with no follow-up (or a scope with biopsies). I hope that everyone using the home test does seek medical attention as well.

Thank you very much for mentioning the test. It is important for everyone to be aware of their options. I have talked to many who have had difficulty getting tested due their MD’s lack of awareness. This can be frustrating and can lead to unnecessary suffering in individuals who remain undiagnosed. The celiac home test provides a nice option.

Shelly

Note: Review tests mentioned in some of my posts in the 12 part series, such as the neurology post. http://celiacnurse.com/neurological-symptoms-ataxia-neuropathies-seizures-strokes-migraines-myopathies-dementia-associated-with-undiagnosed-celiac-disease-gluten-intolerance-or-sensitivities/

]]> By: Vanessa http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/comment-page-1/#comment-1498 Vanessa Tue, 19 Jan 2010 21:19:44 +0000 http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/#comment-1498 Hi! Thanks for your great article. I really enjoyed it. I wanted to pass along some information to you about the Biocard Celiac Test Kit. It's a new at-home test kit that's already widely used in Canada and Europe and currently under review by the U.S. FDA for use in the United States. It's a great new test that lets you test yourself at home for celiac disease through a finger prick. I've given the test to many of my family members since celiac is genetic and it was a quick and easy way to test them for celiac disease without causing a hassle for them. Check it out at http://celiachometest.com/ Hi! Thanks for your great article. I really enjoyed it. I wanted to pass along some information to you about the Biocard Celiac Test Kit. It’s a new at-home test kit that’s already widely used in Canada and Europe and currently under review by the U.S. FDA for use in the United States. It’s a great new test that lets you test yourself at home for celiac disease through a finger prick. I’ve given the test to many of my family members since celiac is genetic and it was a quick and easy way to test them for celiac disease without causing a hassle for them.

Check it out at http://celiachometest.com/

]]> By: David http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/comment-page-1/#comment-1478 David Mon, 11 Jan 2010 22:49:56 +0000 http://celiacnurse.com/would-early-screening-for-celiac-disease-and-gluten-intolerance-decrease-the-high-prevalence-of-food-allergies-intolerances-or-sensitivities-evident-in-many-countries/#comment-1478 Yes, I agree. And there are a class of molecules (lectins) that are particularly problematic for those people with increased intestinal permeability. Check out my website for more information. Yes, I agree. And there are a class of molecules (lectins) that are particularly problematic for those people with increased intestinal permeability. Check out my website for more information.

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